Spotlight on HIAS

HIAS: Welcome the stranger. Protect the refugee.

Next in our series of posts about Charitocracy nominees, we have HIAS, nominated by donor r.a.y.. They protect, advocate for, and help resettle refugees in the U.S. and beyond.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

About HIAS

Vision

HIAS stands for a world in which refugees find welcome, safety, and freedom.

Mission

HIAS rescues people whose lives are in danger for being who they are.

  • We protect the most vulnerable refugees, helping them build new lives and reuniting them with their families in safety and freedom.
  • We advocate for the protection of refugees and assure that displaced people are treated with the dignity they deserve.

Guided by our Jewish values and history, we bring more than 130 years of expertise to our work with refugees.

So visit HIAS's page on Charitocracy to vote for, like, or discuss this cause! And watch this video of a recent HIAS-led trip to the U.S.-Mexico border to bear witness to the crisis affecting families and other asylum seekers:

Spotlight on The ChadTough Foundation

The ChadTough Foundation

Next in our series of posts about Charitocracy nominees, we have The ChadTough Foundation, nominated by donor brian. They fund research and raise awareness of pediatric brain tumors, with emphasis on Diffuse Intrinsic Pontine Glioma (DIPG).

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

The ChadTough Foundation

The most hated word in the world of pediatric brain tumors is “rare.” “Rare” is the reason there is not enough research being done. “Rare” is the reason there aren’t drugs being developed. “Rare” is the reason there is so little funding. “Rare” is why our kids don’t have more options. The three facts below negate the claim of “rare”:

  • Cancer is the number one disease killer of children in America.
  • Brain tumors are the leading cause of cancer-related death in children.
  • DIPG is the leading cause of death from brain tumors in children.

DIPG

DIPG is a brain tumor found in the Pons of the brain stem. Children are typically diagnosed between the ages of 5-7 with around 300-350 new cases per year in the United States. The median survival rate is 9 months from diagnosis, only 10% of patients survive 2 years from diagnosis. Long term survivors total less than 1%.

What makes DIPG so difficult to treat is not only its location (a very small area of the brain stem responsible for many critical bodily functions including breathing, swallowing, respiration, equilibrium and eye movement) but also the fact that it is “diffuse” (as opposed to looking like a solid mass or ball, it spreads out and mixes with healthy cells, it is sometimes described as looking “marbled”).

One of our doctors called it “the worst kind of tumor in the worst possible place.” The only standard of care to treat DIPG is radiation. Radiation is used to shrink the tumor giving temporary relief of symptoms but after a period of time the tumor typically grows back. As it grows, it cuts off those critical bodily functions until the child can no longer swallow or breathe and eventually succumbs. You cannot surgically remove DIPG and until very recently it was considered dangerous to even biopsy. This has resulted in very little DIPG tissue being available for researchers to study.

Perspective

As a parent of a child with DIPG it’s hard to describe the bewilderment and anger you feel when you are told the standard of care for DIPG has not changed in over 40 years. When you combine a lack of tissue to study with a severe lack of funding for childhood cancer, you end up with no progress.

Approximately 4% of the taxpayer-funded National Cancer Institute’s (NCI) annual budget is directed toward pediatric cancer. Not 4% for DIPG, not 4% for pediatric brain tumors… 4% for ALL of childhood cancer! Drug development is a huge issue for pediatric cancer. Drugs are developed almost exclusively for adult cancers and then simply “taken down” to treat pediatric cancers. Our children deserve better than this.

Vision

DIPG presents a great challenge. It is an extremely difficult and complex disease. We believe a cure will come from talented, passionate people working collaboratively. It will come from “Thinking outside the Box” and taking some risks. It will come from small breakthroughs happening in many different areas of medicine. The ChadTough Foundation is committed to funding this work.

So visit The ChadTough Foundation's page on Charitocracy to vote for, like, or discuss this cause! And watch this video about ChadTough's namesake, and the organization's efforts to rid the world of DIPG:

Spotlight on Hydrocephalus Association

Hydrocephalus Association #NOMOREBS

Next in our series of posts about Charitocracy nominees, we have Hydrocephalus Association, nominated by donor magresto. They are working to cure hydrocephalus, an abnormal accumulation of cerebrospinal fluid within cavities of the brain.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

Hydrocephalus Association

Community. Clarity. Cure.

Seeking an end to hydrocephalus.

The Hydrocephalus Association serves as the primary nexus for research on hydrocephalus, a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid (CSF) within the cavities of the brain. Hydrocephalus affects over 1 million people in the U.S. alone. Approximately 1-2 babies for every 1000 births are born with hydrocephalus, but anyone can get hydrocephalus at any time through a brain injury or infection, among other reasons, or as part of the aging process.

In our effort to find a cure, HA pursues a three-pronged strategy.

COMMUNITY

Hydrocephalus means a lifetime of uncertainty for the families and individuals who are confronted with a diagnosis or who are affected by the condition. Naturally, they want to learn more, to understand what the condition entails, what treatments are available, and they want to know they’re not doing this on their own. We understand this, because many of us have stood in those same shoes. To help, HA gathers together valuable resources and connects individuals to larger communities that can provide support and understanding. By providing an online library and common space for those dealing with hydrocephalus, HA works to reduce uncertainty, advance the overall hydrocephalus community, and provide as much insight as possible into what remains an often challenging and bewildering condition.

CLARITY

Despite its broad prevalence, hydrocephalus remains a misunderstood and often hidden condition, and the general population largely remains unaware of the breadth and depth of the impact of hydrocephalus. This lack of clarity complicates diagnosis, and not surprisingly, it also results in limited funding. For example, while hydrocephalus is 30x more common that Cystic Fibrosis, it receives only 1/13th of the federal research money.

HA works to educate national and state policymakers, the medical community, and the general population about the nature and extent of hydrocephalus, and to focus attention on the condition and the legislation/attention needed for individuals to overcome challenges. Our Medical Advisory Board contains leading neurosurgeons, neurologists and other medical professionals and scientists to ensure that we are providing the most current and reliable information. We work to help others see the condition for what it is, so that it can receive the consideration it deserves.

CURE

Today, no cure for hydrocephalus exists, and the primary treatment – the insertion of a shunt into the brain – was developed fifty years ago and suffers from one of the highest failure rates of any surgical treatment. By focusing attention and research monies, HA works toward the ultimate end: a final cure to hydrocephalus.

Little is known about the causes of hydrocephalus, but recent research offers hope that a cure is indeed possible. Already we are seeing improved diagnostic techniques. New valve designs are improving the efficacy of the shunts used to treat patients. New treatment options have opened up the possibility of a life without a shunt for some individuals. Studies in biomarkers and genetics are providing promising insights into how we might prevent the condition from occurring. This is the power that research has, and every dollar matters. The more research we can fund now, the better the scientific foundation upon which future research will build. HA supports a Strategic Research Initiative that focuses on work that will truly advance our understanding of the condition, and with that, discover its causes, improve its treatment, and help us see an end to hydrocephalus.

So visit Hydrocephalus Association's page on Charitocracy to vote for, like, or discuss this cause! And watch this video about HA's efforts to cure Posthemorrhagic Hydrocephalus:

Spotlight on Preston’s March For Energy

Preston's March For Energy

Next in our series of posts about Charitocracy nominees, we have Preston's March For Energy, nominated by donor ColleenOBX. They provide access to adaptive bicycles for children with special needs.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

Preston's March For Energy

Preston is a young man with Mitochondrial Disease, which leaves him with low muscle tone and developmental delays. He tires easily and has balance issues but everyday he wakes up smiling and determined to keep up with this friends and especially his big brother!

During the summer of 2011 Preston was blessed to have an adaptive bike donated to him through a fundraiser that was developed by a family friend. The Buenaga family was amazed by this overwhelming support, and they are determined to “pay it forward” by raising money (each bike costs between $1400 and $2500) for more children to realize their dream of riding their own bike.

Preston’s March for Energy was created with this goal in mind. With the overwhelming need for adaptive recreational equipment for children with disabilities and the concern for childhood obesity Preston’s March For Energy’s mission is to provide adaptive bikes to children with special needs.

So visit PMFE's page on Charitocracy to vote for, like, or discuss this cause! And check out this thank you video celebrating their 300th donated bike a few months ago:

Spotlight on Cerebral Palsy Alliance Research Foundation

Cerebral Palsy Alliance Research Foundation

Next in our series of posts about Charitocracy nominees, we have Cerebral Palsy Alliance Research Foundation, nominated by donors katnadam0616. CPARF funds cerebral palsy research.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

Cerebral Palsy Alliance Research Foundation

What is Cerebral Palsy?

Cerebral palsy (CP) is a physical disability that affects movement and posture. 1 in 3 children with cerebral palsy cannot walk and 1 in 5 cannot talk.

Our Story

Cerebral Palsy Alliance Research Foundation was proudly established in the United States in 2015 to fund the world’s best research to treat, prevent and find a cure for cerebral palsy.

Purpose and Vision

Our vision is a future without cerebral palsy. Our purpose is to support the world’s best and brightest researchers to find a prevention and cure for cerebral palsy.

So visit CPARF's page on Charitocracy to vote for, like, or discuss this cause! And check out this short video about their latest fundraiser:

Spotlight on AFSP

American Foundation for Suicide Prevention (AFSP)

Next in our series of posts about Charitocracy nominees, we have American Foundation for Suicide Prevention, nominated by donor Stephanie, who recently lost a close family member to suicide. You and your family are in our thoughts, Stephanie. ❤️

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

American Foundation for Suicide Prevention (AFSP)

Mission: Save Lives and Bring Hope to Those Affected by Suicide

Established in 1987, the American Foundation for Suicide Prevention (AFSP) is a voluntary health organization that gives those affected by suicide a nationwide community empowered by research, education and advocacy to take action against this leading cause of death.

AFSP is dedicated to saving lives and bringing hope to those affected by suicide. AFSP creates a culture that’s smart about mental health by engaging in the following core strategies:

  • Funding scientific research
  • Educating the public about mental health and suicide prevention
  • Advocating for public policies in mental health and suicide prevention
  • Supporting survivors of suicide loss and those affected by suicide in our mission

Led by CEO Robert Gebbia and headquartered in New York, and with a public policy office in Washington, D.C., AFSP has local chapters in all 50 states with programs and events nationwide. AFSP celebrates 30 years of service to the suicide prevention movement. Learn more about AFSP in its latest Annual Report, and join the conversation on suicide prevention by following AFSP on Facebook, Twitter, Instagram, and YouTube.

So visit AFSP's page on Charitocracy to vote for, like, or discuss this cause! And check out their short video to learn how you can fight suicide:

Spotlight on Malala Fund

Malala Fund

Next in our series of posts about Charitocracy nominees, we have Malala Fund, nominated by donor SuZQ. They break down barriers preventing more than 130 million girls around the world from going to school.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

Malala Fund

Malala Fund is working for a world where every girl can learn and lead.

With more than 130 million girls out of school today, here’s how we’re breaking down barriers that hold girls back.

Investing in local education activists

Through our Gulmakai Network, we invest in local educators and advocates — the people who best understand girls in their communities — in regions where the most girls are missing out on secondary school.

Advocating to hold leaders accountable

We advocate — at local, national and international levels — for resources and policy changes needed to give all girls a secondary education. The girls we serve have high goals for themselves — and we have high expectations for leaders who can help them.

Amplifying girls’ voices

We believe girls should speak for themselves and tell leaders what they need to learn and achieve their potential. We amplify girls’ voices and share their stories through Assembly, our digital publication and newsletter.

So visit Malala Fund's page on Charitocracy to vote for, like, or discuss this cause! And check out their short video explaining what they do and why they do it:

If you have more time, watch Malala Yousafzai's Nobel Prize acceptance speech:

And finally, if you have even more time, spend an hour with Malala and Dave Letterman on his Netflix show.

Spotlight on ProPublica

ProPublica - We're still not shutting up.

Next in our series of posts about Charitocracy nominees, we have ProPublica, nominated by donor zardoz. They produce journalism in the public interest.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

ProPublica

The Mission

To expose abuses of power and betrayals of the public trust by government, business, and other institutions, using the moral force of investigative journalism to spur reform through the sustained spotlighting of wrongdoing.


ProPublica is an independent, nonprofit newsroom that produces investigative journalism with moral force. We dig deep into important issues, shining a light on abuses of power and betrayals of public trust — and we stick with those issues as long as it takes to hold power to account.

With a team of more than 75 dedicated journalists, ProPublica covers a range of topics including government and politics, business, criminal justice, the environment, education, health care, immigration, and technology. We focus on stories with the potential to spur real-world impact. Among other positive changes, our reporting has contributed to the passage of new laws; reversals of harmful policies and practices; and accountability for leaders at local, state and national levels.

Investigative journalism requires a great deal of time and resources, and many newsrooms can no longer afford to take on this kind of deep-dive reporting. As a nonprofit, ProPublica’s work is powered primarily through donations. The vast bulk of the money we spend goes directly into world-class, award-winning journalism. We are committed to uncovering the truth, no matter how long it takes or how much it costs, and we practice transparent financial reporting so donors know how their dollars are spent.

ProPublica was founded in 2007-2008 with the belief that investigative journalism is critical to our democracy. Our staff remains dedicated to carrying forward the important work of exposing corruption, informing the public about complex issues, and using the power of investigative journalism to spur reform.

So visit ProPublica's page on Charitocracy to vote for, like, or discuss this cause! And finally, check out their video explaining what they do and why they do it:

Spotlight on Youth Pride Inc.

Youth Pride Inc. (YPI)

Next in our series of posts about Charitocracy nominees, we have Youth Pride Inc., nominated by donor melissa745. They offer a safe space for LGBTQQ young people.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

Youth Pride Inc.

History

YPI started as a support group of the YWCA of Greater Rhode Island in December of 1992. In the middle of a snowstorm, four youth and an adult facilitator held their first meeting at Brown University’s Sarah Doyle Women’s Center. They shared their experiences, built community and named themselves, “The Way Out.” This small weekly group grew quickly soon overtaking the Women Center’s living room, with dozens of young people sitting on laps, tables and every part of the floor. In order to meet the needs of this rapidly growing group, “The Way Out” became Youth Pride, Inc, (YPI) and received its own tax-exempt status as a not-for-profit organization in 1994.

Our Mission

Youth Pride, Inc. is dedicated to meeting the unique needs of youth and young adults impacted by sexual orientation and gender identity/expression while working to end the homophobic and transphobic environments in which they live, work and play.

Our Statement of Values

  • LEADERSHIP: YPI is committed to creating the leaders of today. Youth voices drive our process, and we seek to develop the leadership skills necessary both within the organization and outside of it.
  • AFFIRMATION: YPI believes all youth must be affirmed for who they are and how they express themselves. We are committed to making that a reality in all of the environments in which young people live.
  • COMMUNITY: YPI believes building strong connections is essential to youth success and empowerment. We strive to create a caring, respectful and diverse community of young people and adults.

So visit Youth Pride Inc.'s page on Charitocracy to vote for, like, or discuss this cause! And finally, check out this video about them:

Spotlight on Mission 22

Mission 22

Next in our series of posts about Charitocracy nominees, we have Mission 22, nominated by donor emily0153. They’re fighting the war against veteran suicide.

A few words on Charitocracy

Firstly, for newcomers: here's how it works. Donors pool their monthly contributions, as little as $1. The cause with the most votes each month wins the pot. No matter how much or how little you contribute, each donor at Charitocracy gets one vote. This is where charity meets democracy. So please share this post and ask your friends to join us and vote! That's how we spread the word and, as a result, grow the monthly pot. The bigger the pot, the bigger our positive impact on the world!

According to a Department of Veterans Affairs study, each day over 20 veterans take their own lives. But together we can win the war against veteran suicide. Join Mission 22 to let our vets know that they have an army behind them. Your donation dollars assist us in getting veterans treatment when they need it the most, right now.

Elder Heart is the 501(c)(3) behind Mission 22. Its Board of Directors is comprised of Special Forces operators Magnus Johnson and Mike Kissel and Infantryman Brad Hubbard. Because of their personal battles with PTSD and TBI they have made it their mission to raise awareness, enlist support, and end veteran suicide in America.

So visit the Mission 22's page on Charitocracy to vote for, like, or discuss this cause! And finally, check out their video: