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Nominated Cause
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jmw615This is the official discussion thread for the cause Cystic Fibrosis Foundation. Its EIN is 13-1930701 and it's a public charity based in Bethesda, MD. Research more info about the cause on GuideStar and Charity Navigator.
We work to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives.
CF is not okay! Let’s donate to stop this awful disease.
Also read Charitocracy's blog post about Cystic Fibrosis Foundation!
Julie Miller
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Comments
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AshleyOlveyI’m nominating the Cystic Fibrosis Foundation! Cystic fibrosis is a genetic disease affecting the lungs & digestive system primarily. To just maintain their “baseline health,” most affected by CF have to do well over 20 hours of treatments & take hundreds of pills each week-just to maintain! When CFers are sick it’s well over 40 hours a week! 30,000 children and young adults in the US have this fatal disease (“Children & YOUNG adults” because most don’t live past their late 30’s). Cystic fibrosis is known as an “orphan” disease because 30,000 people struggling daily just to breathe isn’t enough to qualify for government funding to assist in finding a cure. That’s where the Cystic Fibrosis Foundation has come into play! The Cystic Fibrosis Foundation is a donor supported nonprofit- determined to find a cure & is responsible for just about every drug, therapy & treatment now available to those with CF. The average life expectancy would undoubtably still be 5-6 years old instead of now being well into late 30s- early 40s. My daughter, Boston would’ve already hit her expiration date without the hard work & determination of the Cystic Fibrosis Foundation- VOTE CYSTIC FIBROSIS FOUNDATION!
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shelA little girl that I was a nanny for passed away at age 16 from CF. Far too young!! She was vibrant and wonderful in every way. We need to get more votes for November. We are so close.